Woman, 40, Who Announced On Live TV She Was Going To Dignitas C

  • A WOMAN with cystic fibrosis who spoke about plans to end her life live on This Morning "feels reborn" after taking a life-changing drug.

    Jennie Thornton, 40, who has battled the deadly genetic disease since she was a baby, says she has discovered a new lease of life.

    Jennie Thornton, 40, who has battled the deadly genetic disease since she was a baby, says she has discovered a new lease of lifeCredit: Mirrorpix 

    In 2013 she told of plans to visit assisted suicide clinic Dignitas to end her life after 40 years of agonyCredit: Mirrorpix 

    Jennie Thornton appeared on This Morning in December 2013 talking about her plans to end her lifeCredit: Rex Features

    In 2013 she told of plans to visit assisted suicide clinic Dignitas to end her life after 40 years of agony.

    But she said four decades of pain had lifted from her shoulders within days of becoming one of 120 sufferers in the UK to take the drug, Kaftrio.

    Jennie told the Mirror: “I knew I was on the list for the drug and when it arrived in March I tried not to get my hopes up.

    “But the results were almost instantaneous. All my family sat with me in the garden when I took my first pill at 10.30am on a Saturday morning.

    “By 4.30pm the cough I’ve lived with all my life had eased. In two weeks my lung function had shot up to 60%, I gained 10lb and no longer felt breathless and exhausted. In short, I don’t feel like I’m dying any more.”

    She also noticed that the salty skin characterising CF sufferers had ­disappeared. Four decades of pain had lifted from her shoulders.

    Jennie's mum Debby made the decision to help end her terminally ill daughter's life at the Dignitas Clinic in SwitzerlandCredit: Rex Features 

    She said four decades of pain had lifted from her shoulders within days of becoming one of 120 sufferers in the UK to take the drug, KaftrioCredit: Mirrorpix 

    She also noticed that the salty skin characterising CF sufferers had ­disappeared after starting the implant drugs treatmentCredit: Mirrorpix

    What are the symptoms of cystic fibrosis?

    While individuals can have different symptoms, some of the main indicators as listed by the NHS can be:

     

    • Recurring chest infections
    • Difficulty putting on weight
    • Wet-sounding coughs
    • Diarrhoea
    • Occasional wheezing
    • Shortness of breath

     

    Those diagnosed with the disease are also at risk of other conditions, including diabetes, osteoporosis and liver problems.

    Kaftrio, called Trikafta in the US, is now licensed for use by the NHS and offers hope to thousands of CF sufferers.

    The genetic degenerative disease causes the body to produce a thick, sticky mucus that affects the lungs or digestive system. Sufferers eventually die from lung collapse or organ failure.

    In 2013 Jennie spoke about her plan to attend Dignitas in an interview on This Morning.

    Speaking about life as the pandemic approached, Jennie said: “I was in and out of hospital and in a very dark place as I confronted my very limited life expectancy in the face of a global health pandemic.”

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    “It sounds bleak, but I resigned myself to the worst. I told my family that should I contract Covid-19 I did not want to go on to a ventilator and cling to life.”

    “I’ve been given my life back. I’m euphoric. I began to realise that I am laughing all the time. Throughout my life I’ve suppressed laughing, as it took up too much lung function. Now I laugh all the time. I feel reborn.”

    A life dominated by endless hospital appointments and a daily drug and physiotherapy regime has now been replaced with a new one.